I finally feel like I can breathe a sigh of relief. My follow-up blood work and CT scans confirmed I am cancer-free. I was technically cancer-free three months ago, but the doctors expressed some concern (a less than 5% chance) that microscopic cells had spread to my lymph-nodes. Now that these results have come back, I finally feel able to accept that I’m free from those shackles.
A lot has changed in three months. We live in California now. I’m not sure how we survived the move. Having cancer, having surgery, going through recovery, taking all our personal belongings and saying goodbye to people we loved. Whew. Just typing it out puts me in a state of disbelief. But somehow we did it.
Our son is perhaps just days away from taking his first steps. This morning, he started standing up with the help of furniture. I couldn’t believe it when I saw him standing up in his bed, with that huge grin on his face. He knew what he’d done and he was proud of it. It breaks my heart a little.
I’ve been looking through photos and videos, taken just mere months ago, and feeling like they were only yesterday. How did this little baby, whom I held in my arms day after day, night after night, turn into this active little boy, giggling and playing, and growing up much too fast. Every parent talks about how quickly their children grow up. I knew it was true. I never doubted it. But I also wasn’t prepared. It just rips your heart out in a way I can’t describe.
I love who he’s growing up to be. He matures a little each day, and becomes better and better at communication. Sometimes I look at him and our eyes meet, and I capture this moment of “knowing” that we’ve connected somehow. And yet I miss the days when he was just a little spud, whose little head fit in the nook of my shoulder.
Ah, that nook. Parents know that nook. We spend less and less time cuddling, and someday his head won’t fit there at all.
What was the point of my story…?
Life changing, babies growing up, life speeding by.
Well this is just a combination of thoughts, and feelings, and memories. Tomorrow I will start a new day, reaffirmed as cancer-free, and clinging desperately to each moment of our son’s time as an infant.
I decided to write a letter to Mrs. Madrigal, the fictional character from the Tales of the City series by Armistead Maupin. I associate her with warmth, wisdom, and comfort, living in my favorite city in the world. It makes me happy to imagine her reading this, and it actually helped to write this letter. Even though Mrs. Madrigal may not be real, she is always alive in my heart.
Dear Mrs. Madrigal,
I’ve been upset about the news I received today because it wasn’t what I was hoping for. I wanted to hear that everything was okay. I wanted to hear that all my worries were gone. And although the news I received was mostly good—that I’m cancer-free, it still feels like I have to hold my breath as we wait for my three month test to see if any signs show that it’s spread to my lymph nodes. Three months feels like a very long time.
I know I haven’t had the best attitude about this. I know that bigger things are happening to other people, and people endure worse fates every day. But this is the biggest thing that’s happened to me, and that’s where all the fear, sadness, and anger comes from. I can only feel to the extent of my own experience, and I’m doing my very best to understand all these changes. It feels bigger than I am, and so far beyond my control. I just hate it.
But I am trying to be brave, and strong, and happy, because I know that’s what you’d want me to be. And as soon as I get the chance, I’m going to come to San Francisco to see you again.
I am looking forward to living in California and I can’t wait to live in our new house. I think you’ll like it. It’s a Spanish Ranch style, with a Tuscan yellow stucco exterior. I love it because it’s just so ridiculously Californian, and so different from the traditional middle-America brick house we have now.
We never saw ourselves as the type to live in a Ranch house. We’ve preferred having the division of two stories. But this one is different. It’s a very smart layout, with plenty of privacy for guests on the opposite side of the house. As soon as we saw it, we fell in love and knew it was meant to be our new home.
There’s a park across the street with a bike trail right by our house. No cars to worry about. It’s great because I hate walking in our neighborhood now, right by such a busy road. I get nervous about a driver going up onto the sidewalk, especially after what I witnessed that time a few years ago. I probably would have died that day if I hadn’t crossed the street when I did. So I’m glad that with our new home, there will be a safe place for us to walk with our son and our dog nearby.
I feel better thinking about these things, and imagining the life that waits for us there. Maybe I’ll feel better after we move. It won’t be much longer.
And I’ll feel better when I go to San Francisco again and stop by Barbary Lane. It’s going to be quite a workout climbing the streets of Russian Hill, especially with a stroller! But I’m ready for the challenge. I have to wait six weeks to heal before doing anything strenuous, and I’m so ready to get out and be active again.
Thank you for listening, Mrs. Madrigal. See you soon.
Alright, moment of truth.
The good news first. I am cancer-free, as far as the lab results show. There are no cancer markers in my blood work and nothing has been detected. The doctors removed all the of the tumor/testicle and everything attached to it (tubing, blood vessels, etc). No wonder I feel like someone took an ice cream scoop to my insides! Ouch.
The sort of bad news… There were cancer cells outside of the tumor in the blood vessels attached to that testicle. So that means the cancer cells had just begun to spread outside and the doctor was able to remove all of those. As of this moment, there is nothing left there.
BUT, since they did start to spread, there is a very low chance that it had spread to my lymph nodes in my stomach. If that happened, there could be microscopic cancer cells that are undetectable. We have two options…
1) Go ahead and have one round of radiation therapy on my stomach, which would effectively kill any and all cancer cells that may or may not be there. The benefit is that we could be completely confident that all cancer cells are gone. The risk is that radiation therapy is harsh, and there is controversial information that suggests radiation may create new tumors in the body. The medical community has not arrived at a clear answer on this. But my doctor is not recommending this path right now, and we agree with him. We don’t want to start treatment for something when we don’t know if it’s there.
2) Sit tight and do nothing for now, and then just make plans to go in every 3 months for blood work and CT scans. This would allow the doctor to closely monitor the situation, and if cancer was detected in my lymph nodes, it could be treated. The benefit is that this requires no treatment now. The risk is that if there are still cancer cells in my body, they will be more aggressive by the time they show up, and require a little more treatment. This makes me very nervous and uncomfortable, but it’s the best option we see.
I know I should be happy, but I am just angry. I’m angry because I wanted a clean bill of health. Whenever things don’t go the way we want, it’s human nature to get angry. And that’s how I feel. Babies express this so openly and freely. As we get older, we’re taught to suppress and contain it, but I don’t want to suppress it. I’m fucking pissed.
Now I have to worry and obsess and wait for 3 months to come and do new tests. And then 3 months after that. It feels like a constant cycle to find out if those cells ever spread. And if they did, they are already there. It’s not like I can pray them away.
I will work on a more positive attitude later. For now, I’m just going to feel what I feel… And make some brownies. And have some ice cream. There will probably be some alcohol involved too.
In the morning, we’re meeting with my doctor to review my lab results and get confirmation of whether or not I’m completely cancer-free. I’m very nervous, although I’ve been assured that they saw no evidence that it had spread. I guess we’ll know for certain tomorrow.
Once that’s behind me, I hope to focus on other important decisions… Like shaving. I shaved my balls—plural—before my first exam in August. I consider it good etiquette to clean up down there before an exam. So when I found out I had a testicle that was completely ravaged with a cancerous tumor, at least everyone who saw me naked that day could say, “Hey, that guy takes good care of his bush.”
I have not taken care of my bush since I was diagnosed. There is a long incision across my pubic area from surgery. It looks like the slot of my car’s CD player. I haven’t tried inserting a CD into myself to see if it would work, but I suspect if I did, it would have to be a Mika CD. Our son loves Mika, so of course I would play his CD.
And my one ball, the lone soldier that it is, is just floating there in the middle of a hairy sack, with a surprising amount of grey hairs. When the fuck did my scrotum get old?
I don’t care what Anderson Cooper and George Clooney have done to boost the appeal of the grey-haired population… Grey ball hair is still not and never will be sexy.
Maybe after I get my good news tomorrow—and I do hope it’s good news—I will come home and shave my ball, and try to trim the area around my CD player.
That is all for now.
Dealing with cancer has been a painful reminder of my own mortality. It reaffirms the fact that someday, somehow, I’m going to die. And now I feel like I’ve been kissed by the icy lips of the grim reaper. He put me on his list and even if it’s 60 years from now, I fear that cancer is how I’ll go.
The scary truth is that I could get cancer again. There’s only a 3%-4% chance of developing new cancer, but the fact remains that cancer survivors are at higher risk. This worries me, and quite frankly, it frightens me with a depth that cannot be pacified.
I find myself questioning many things. Most often, I question my health. I have been obsessive about my health. I always tried to eat organic food, avoided pesticides, bought ridiculously expensive body products that were free of parabens and other chemicals, and only used natural home cleaners. I treated my body like a temple because I believed I was building a wall around myself that would keep out all the deadly things in the world. And yet there I was with cancer. Should I have just eaten anything I wanted?
I look at the people around me. Family, friends. Most of them don’t worry about what they eat. They don’t worry about the air they breathe, the chemicals and the contaminants. They go through each day with peaceful bliss and they never get cancer. Statistically, they probably never will have cancer (and I certainly don’t wish it upon them!). So of course I ask, “Why me?”
Asking that question is part of the grieving process. And there is usually no answer. Why me, why me, why me? Nobody knows. Bad things happen. Healthy people get sick. Unhealthy people smoke a pack of cigarettes a day and live to be 102. That’s how it goes.
The first week after surgery was very difficult, but it’s getting better. On a lighter and less depressing note, I kind of like having one testicle. Isn’t that odd?
My underwear has a little more room in the pouch. I like that. And you know how sometimes the seam in the center of your pants gets pulled at the wrong angle and parts your balls in a painful way? That will never happen to me now. My one ball just moves around freely.
It still freaks me out to see myself naked and I try to avoid it. Having one ball looks exactly the way you think it looks. The ball has moved to the center and hangs there. I try to use humor to help. I call myself a uniballer.
There are many thoughts that cross my mind. Too many to process sometimes. I don’t know if cancer is what will ultimately kill me, but for now, I’m cancer-free and alive.
I had my radical orchiectomy surgery yesterday to remove my right testicle, which had a cancerous tumor in it. The surgery went smoothly. I’d never been so scared in my life, but I made it through. The pain has been pretty intense. Medication helps a lot, but it’s normal to still have a little discomfort.
This all happened so fast, I haven’t really processed it yet. I just got the news last week (see previous post). I never expected this to happen, but now I’m Nathan, cancer survivor.
When I was asleep for the surgery, I had a dream about Beyonce running for president in 2016. It’s so funny, but that’s what I dreamt. So when I was waking up, my husband and parents were at my side looking over me. Through heavy eyelids, I whispered, “Beyonce is the answer.”
“What?” they inquired.
“I’ve had an epiphany. Beyonce needs to be our president in 2016. She will solve the world problems. I don’t know who her running mate should be, but she is the answer.”
I’m just glad this is over.
I was hoping it was nothing.
One testicle felt firmer and larger than the other so I made an appointment with my doctor. We did the usual small talk, caught up, and then he did the exam. He looked puzzled.
“Hm,” he said.
Nobody ever wants to hear their doctor say “hm.”
“Let me send you over to imaging to get an ultrasound of your testicles. That will give us more insight into what’s going on,” he said.
I went to imaging and the woman took a long time reviewing the screen as she did the ultrasound. I knew that wasn’t good. I’d hoped she’d just scan them, say they looked normal, and send me on my way. But instead, she must have spent 15 minutes capturing different angles.
I did get to hear the sound of my scrotum. It sounded like a Lady Gaga song. “Rah-rah-ra-ah-ah.” That was fun.
She sent my results over to a radiologist and then came back into the room.
“We’ve found something on your testicle. We’re going to do a CT scan to get a closer look,” she said.
Tears filled my eyes. “Okay,” I said, trying to contain my inner Mariah, who wanted to have a complete breakdown and tear up some silk curtains or something.
The CT scan went quickly. “Your doctor will look at these and talk to you about the results,” they said.
I went to the doctor’s office and waited outside. He had other patients, of course, so I tried to be patient. Every man is fighting his own battle, I reminded myself.
A nurse passed by and saw me. “Oh, hi,” she said warmly. I had talked to her earlier and really liked her. “We’ve received your results and we’re aware of the situation. We just need the doctor to review them and talk to you.”
Fuck again. I don’t want there to be a situation to be aware of. I want it to be nothing. I want to hear that everything is fine, it was a false alarm, and I can finally go home and curl up in bed and cry.
Another nurse summoned me. She was somber and gave me a private room. The doctor came in. He wasn’t smiling.
“You have a large mass,” the doctor explained. He showed me the results and it was almost double the size of my other testicle. I can honestly say I have the biggest balls of any guy I know.
“Are you saying it’s cancer?” I asked.
“It’s a large mass. The results are symptomatic of cancer, but I can’t confirm it. We’ll need to send this on to a urologist to examine the results and meet with you. But either way, your testicle will have to be removed. Even if it’s not cancerous, we can’t leave it in there with the mass.”
(But I love my testicles. Both of them.)
Yesterday I met with the urologist and he confirmed the results. He called it a cancerous tumor that had grown from inside the testicle. That’s actually good news because it’s self contained. It does not appear to have spread and the doctor isn’t concerned about needing chemotherapy or any kind of treatment once the ball is removed. He can’t rule it out, but doesn’t anticipate it.
I’m thankful it isn’t worse, but angry about what it is. Nobody wants to go through this, but it looks like I am.
I know that I’ll be alright. Testicular cancer is easily treated and most men enjoy a 100% recovery. But still… It’s cancer.
I guess I should buy a witty bumper sticker now or wear a wristband. I’ll probably come up with a bunch of jokes too. I was going to ask the woman doing the ultrasound if she could hear a heartbeat but chose not to.
I’ll be having surgery soon and will post an update. I’ve been assured by everybody that this is very easy to remove—outpatient surgery so I’ll go home the same day—and everything is going to be alright.
Our baby boy is very charming and social. He loves to smile and coo at people when he meets them, and he’s good with eye contact. My heart swells with pride every time someone comments on how sweet he is.
In the midst of all this huggable, kissable sweetness, Daniel and I have noticed that a lot of women speak variations of these phrases:
– “Ooh, he’s going to be a lady killer.”
– “He sure is going to break a lot of girls’ hearts someday.”
– “Awww, he’s found himself a little girlfriend.” (Spoken if he merely looks in the general direction of a baby girl.)
Huh? Our baby sometimes falls asleep face down in a pool of his own drool. In his spare time, he enjoys laughing at his own farts. I’m not sure he’s advanced enough for people to start making assumptions about his love life.
I realize no harm is intended, but we think it’s kind of creepy. Let’s start with the fact that he really is just a baby. He’s still discovering his feet, and I’m skeptical that he has any romantic notions about the little girl in the stroller next to him.
The other thing that’s so surprising is the assumption that he likes girls. How would you know if he likes girls or boys—or both? It will still be years before we know that. Yet even as a baby, he’s already being conditioned about what the “correct” attraction is. Boys are supposed to like girls. That’s the way you’re supposed to be, little guy. If you feel differently, there must be something wrong with you.
I was surprised that assumptions were made this young about children. It made me wonder what effect that had on me, and if my childhood could have been a little bit easier if every stranger I met didn’t try to remind me I was supposed to like girls.
My earliest memory of liking a boy was somewhere around age 5. I don’t remember much, but I know I wanted to hold his hand, and I distinctly recall the feeling that I was wrong to want that. I’ve often wondered how I could have such internal guilt at such a young age. Now that we’ve witnessed what people say to our son, it all makes sense. No wonder the LGBT community has such a difficult time with our childhoods! Look at how young we start being shaped by the expectations of others.
Let’s look at things from another angle. Say I’ve just met a straight couple and their baby boy. I look at their son and say, “Aww, he sure is going to break a lot of boys’ hearts.” Or maybe better yet, I’d say, “Oh, I think he’s going to be my son’s first boyfriend!”
I don’t care how liberal the other couple was—if they were straight—I suspect most of them would act shocked and offended. How dare I make assumptions about their son! How dare I imply he’s gay! I must be pushing my homosexual agenda onto their child.
Oh, but wait. Wouldn’t it be fair for me to say they were pushing a heterosexual agenda on our son? They’d find some reason to disagree. “It’s not the same,” they’d argue. Things would probably erode pretty quickly from there.
Bottom line: Let’s stop assuming the sexual orientation of children. It’s pretty ridiculous. If a child is gay, you’re only going to make it more difficult for him to “come out” because it goes against the social cues he’s observed since the day he was born. Let’s be neutral and inclusive of all children, and stop worrying about who they’ll date when they’re older.
Memory Lane. You know the place. We all go there sometimes. It looks different for every person, with varying sights, sounds, and smells, but the feeling is universally understood.
We were younger then. Life was easier, although we didn’t realize it at the time. And although we may not regret leaving that place, we still feel a tinge of sadness when we reminisce about the way things used to be.
As my time in Tennessee grows shorter, I’ve been reflecting on the life I’ve lived here for the last decade. A few days ago, I was in the area by a townhouse I once rented. I decided to stop by the subdivision and go to the walking trail by the river.
It was sunny and the woods were lush. I could hear the hum of insects in the trees. What is that sound anyway? Cicadas, I think, but I’m not sure. It’s a summertime sound everyone in the South knows, and yet I’ve never bothered to learn what it is. It’s daunting to think I won’t hear that sound anymore when we move to California, at least not in our backyard, which probably won’t have trees.
I walked down the trail and looked for a little path that led to the river. Years ago, when I lived there, there were trees that had been knocked down by the 2009 tornado. They created a bridge that you could walk right over the water on.
The path had since become overgrown with greenery, and I suddenly felt self-conscious about forcing through toward the water. What if I walked through poison ivy? What if I became covered in ticks or stepped on a snake? And where the hell did my sense of adventure go?
I pushed through the thick growth and got nervous as I found myself halfway in. I couldn’t see the path I’d come from anymore. Nobody knew I was there. There were cups and other litter in the dirt, so I knew others had found the same path. I suddenly wondered if someone could be there at the moment. Jason Voorhees? I got nervous, but I powered through anyway and found the water.
The bridge of trees wasn’t there anymore. It was uneventful, but I was glad I’d done it. I turned around and pushed my way back through again until I found the trail. Thankfully there was no poison ivy, no snakes or ticks. Take that, mother nature!
I walked down a different path near an area that was believed to be haunted. The Battle of Stones River took place there and quite a few soldiers had died there. I remember when I lived near there, I would hear a strange tapping sound coming from the ceiling in my 2 story town home. The problem was, nobody was upstairs, so who was making that tapping sound? I always used to say it was a ghost from the battle—a soldier who’d died there, but a friendly one who didn’t give me any trouble. I just hoped he wasn’t watching me poop.
Eventually I’d had enough nostalgia. I made my way back up to my car after walking by the townhouse I used to live in. Somebody else lived there. They had red curtains from World Market. I remembered the beautiful old chestnut bookcase built into the living room next to the fireplace. I wondered what books they had on their shelf.
I said goodbye to the river, to the woods, the town home and the friendly ghost, and drove away knowing I’d probably never go back there again. When I got stuck in the obnoxious left-turn exit that is impossible to get out of because of all the traffic coming from both directions, I suddenly remembered why I’d hated living there.
Yeah, fuck that. I won’t be going back.
Yesterday The Verge posted an article about how mobile web browsers were completely broken and how poor the overall user experience was on mobile. (View the article here.)
I agree that it’s broken. It is increasingly frustrating to view websites on mobile, which is disappointing since so many websites now have a mobile design—which is supposed to make viewing easier.
But the most glaring problem was demonstrated right on The Verge’s page: Overwhelming banner ads! Those are one of the biggest problem with mobile websites today.
George Takei, one of the most popular and influential celebrities on social media, is also one of the worst offenders. All day long, he posts linkbait articles for strange sites (Diply? What the fuck is Diply?), which are bogged down by banner ads. Worse yet, their paper thin content is spread out over 5 pages, which you have to keep clicking on “Next” just to keep reading and keep seeing more ads on another page.
The mobile web is broken, but I don’t think it’s because the technology is poor. Browsers like Safari and Chrome give me a smooth, reliable experience on my phone. Instead, I think the biggest problem is this shitty web design and banner ad overload that has become the norm these days.
All trends come and go eventually, so I’m hoping that good, clean web design becomes popular again. (How did it ever go out of style anyway?)